Monday, December 31, 2012

21 Days.... 3 weeks...

At this very moment(11:54am) 3 weeks ago I was waking up in the recovery room with an aching back and sick to my stomach. What an amazing journey this has been. I have met some wonderful people along the way. I have met people that are in desperete need of a kidney and no donor to match, as well as a reciepient. And here it is New Years Eve time for resolutions to be set. I have been trying to think what kind I would make for myself this year... I never really make out a list to follow, just kinda toss some ideas in my head and try to stick with them. So this year I choose to Live my life with more Passsion, I already do this but I want to continue to grow in this way... I also choose to live a little healthier with my diet and exercise, I am already pretty good with this too, well not the exercise part :-/ Volunteering more is on my mental list also...more than just at the food bank. Volunteering with LifeShare of Oklahoma to continue my vow of raising awareness. So wish me luck!
On the 27th, I went to my post op check up and did my first round of lab work, everything looked good! I am a little bit anemic, due to not eating enough, but overall all of my numbers are good! I don't have to go back till I reach the 3 mth mark, then it's just lab work unless there are problems! Dr. Samara was pleased with everything and thanked me for my donation. My scar is healing really well too! While I was in the waiting room I met a young man named Jason. We started talking and he had a transplant in 2005.. He said since that his life has improved so much. His donation was from a young man in his 30's that passed away in a motorcycle accident. Jason has tried to find the family to thank them for saving his life but there has been no such luck.:-( it has me thinking who received my dads corneas?!?! Does anyone in my family know?!?! Something I haven't asked anyone.. I need to see if I can find out! Jason also said his transplant also lead him to meet his amazing wife! What a great story. Fate, that's all it is! Congratulations Jason on your new life!!! It was so nice to meet you!

Today I went back to work.. It was a nice easy day.. We closed at noon, for the holiday and we are closed tomorrow. This will make for a good "get back into the swing of things" I am definitely ready for this... My back has been hurting a good deal today, but all in all I'm good.

Milton is also improving:-) can't wait to be able to hang out with Milton, Brittany, and Zarria... And get to know each other! All in due time I know..
Well I'm going to close up now.. Thank you everyone for your love and support. God Bless!







Tuesday, December 25, 2012

15 Days Post Op

Christmas Day... It's been 15 days.. I would say the recovery has gone very well.. My back pain has become very minimal,Thank God.. I have had some amazing support from my friends and family.. Beautiful flowers made my house smell delightful.. I started driving at Day 10... No problems! I actually drove to Enid(1.5 hrs) on Sunday(day 13) and returned home the same evening... I still felt pretty good.. I'm still forcing myself to take it easy.. I go for my checkup with Dr.Samara on Thurs the 27th. To be released for work... I am to return on the 31st... Then life will be back to normal..

The recipient has encountered a few health issues, that lead to another hospital stay in ICU...I hear he is recovering well... I don't know what of them were connected to the transplant.. The kidney has continued to function well for him.

















Friday, December 14, 2012

Extra Extra Read All About It!!!!

This just in!!!! Susan emailed me the pictures that Dr. Scott Samara took with his cell phone. This is just simply amazing. Unheard-of actually!!! They don't usually allow pictures to be taken in The OR. I am so thankful for this team of doctors, nurses, and care takers... Thank You God!!!! And a huge shout out to my dear friend David Lee Grayson Jr., he Is on the bandwagon to spread the awareness to all his contacts in Hollywood... Together we will raise awareness!!!!!











Thursday, December 13, 2012

Post op...

First I'd like to apologize for not writing sooner... Today is Thurs, Dec 13th. Surgery was Monday, December 10th. I think I left off where I was eight hours till i had to be at the hospital. Sunday I was on a liquid diet so essentially the last time I ate was Saturday evening at Cheesecake Factory, till today... (I've had no appetite) We arrived at the hospital Monday morning 5 AM. I registered for surgery on the kiosk and was shown where to go, to the second floor to the surgery waiting area. We waited there for a few minutes and they called my name. They took my vitals, my weight, and started an IV... that was a chore. Before long, Dr. Shea Samara and Susan came in. He marked my left leg to show that that was the side they were going to operate on. Then my surgery nurse rolled me back to the operating room. I've asked for plenty of pictures, anything that they can provide for me so I could pass along on the blog the more education out there I think the better people understand and the more likely people will be to help a fellow person in the future. I am waiting for the pictures Dr.Scott Samara took with his phone in the OR, how awesome!! Once in the operating room, I just remember moving from the gurney to the table and that is pretty much it, after that I woke up in the recovery room with my back hurting pretty bad which was a combination of the bed that they had there and the way that they have to remove the kidney. I was a little nauseous but I think it was the taste of the medicines in my mouth that was making this happen. I was able to sit up in the recovery room. Then I was taken to my own room on the seventh floor,which is where the liver transplant patients are. Myself and recipient on separate floors. Susan had prepared me for the second day, saying it was going to be my worst day. I would say that she was pretty accurate on that. My biggest challenge was fighting headaches, fatigue, back pain, and nausea. With medication they were able to control all of those. Tuesday, day two, I pretty much slept all day with the exception of a few visitors coming in. I did managed to walk the halls a couple of times. The catheter was removed that morning my kidney was functioning perfect. The doctor had also mentioned that the recipients new kidney(John Matthew) started functioning right away and producing urine for him:-) Day three of the hospital stay, I was able to meet the recipient so I got up in the morning took a shower and waited to visit him. At this point I still knew very little about him I been told several different ages 28, 29, 25, turns out he's 26 and a history teacher. His wife is also a teacher. He actually teaches a mile from my house, small world! I learned that when he was a junior in high school he lost a lot of weight.. Doctors couldn't find anything wrong with him... Finally one doctor did a urine test.. And that spring break day he found out he had Focal Segmental Glomerulosclerosis
​FSGS, Focal segmental glomerulosclerosis, is a disease that infects the kidneys. It is also termed focal glomerular sclerosis or focal nodular glomerulosclerosis, because it is the scarring of some of the glomeruli located in the nephron of the kidneys. Every year five thousand four hundred patients will be diagnosed with FSGS. FSGS is an autosomal dominant disease so it is inherited by a mutated chromosome from one of the one though twenty two chromosomes and is very common in the family history. Scientists say it is the nineteen or sixteen, but in most cases it is the chromosome that is affected is chromosome eleven. He has been on dialysis for three years as well as the list. Milton and Brittany are amazing people... They loved the gifts as well as, all the bible verses I quoted. And they thought the names for the kidneys were perfection! I loved meeting this couple.. We Skyped his mother and 6y/o daughter. ... Just an amazing story in God's plan. I am so pleased that they want to be part of our lives, as we want to be part of theirs. I am overwhelmed with emotions. I am just so happy that we were compatible and then able to be part of each others lives... Exchanging our information just takes me to the nth degree... Shortly after our meeting we were both released from the hospital. I'm feeling pretty good right now... The pain levels have not been crazy high. The worst of all the pain has been the pain from the laparoscopic gas that they use... It makes it feel like when you run for a longtime and get stitch in your side. Other than that some back pain, from laying around. I had my first outing today to get my meds... It was a little much.. But just rested on the bench while they prepared it ANC I was good to go..

If I was asked would you do it again... ABSOLUTELY without hesitation... Was it worth it???? Yes it was.. Actually, more than worth it.. For two strangers to meet and see that we already had so many connections. And to save a life and allow someone to raise their child and that sweet child be able to hold her daddy's hands and his beautiful wife to be able to grow in love for years to come... Yes!!! Yes!!! Yes!!!!

I want to give a big THANK YOU! To the doctors, nurses(especially David's Humor), Susan, my friends, family, my coworkers, just everyone that has supported me through this whole process!! All of our prayers have been answered!
I will be updating this blog for a long long time... Thank you for reading and sharing!!! GOD BLESS!!













































Sunday, December 9, 2012

8 hrs...

Only 8 hrs till I have to be at the hospital registration desk. I can't believe the time is finally here...something that I have always dreamed of doing.. :-)
I think I got all of my to do list completed and if not... Oh well.. They will get done later... No biggie.. I did manage to get things put together for recipient... :-)


My sister arrived Saturday early afternoon.. We had a good day.. Running around here and there... Was able to get a pedicure and bought me some Thunder Orange pants, love them!!!! Even spent some time with Ashlynn:-) This morning was a nice surprise.. Moma was here.. She drove all day and night. :-) we woke up Sunday morning and all headed to church.. Campus Pastor Brian said a few more prayers for everything.. What a great day!
Cheesecake Factory was my last real meal last night. I was allowed to have a small breakfast before going to a liquid diet and drinking that Mag citrate... I am used to drinking chocolate slim fast for breakfast. So that was my choice today. I have had water, beef broth, chicken broth, hot mint tea, and Gatorade today...not bad overall. Just miss the actual act of eating.... My belly feels pretty good now... I did feel really sick to my stomach once I finished the Mag Citrate.. But eventually that past. Now it's 9:24 and I am super tired.. Going to shower and scrub with the hibcleans soap and try to get a little sleep. I'll post as soon as I can. Thank you for reading and pass this blog around!!!
God bless you!!!











Friday, December 7, 2012

Last Day At Work....

Today is my last day at work till the 31st of December or maybe even till January 2nd. I can't describe my feelings at this point... I have so many flowing through my body! I am so thankful that I am healthy enough to even do this. I could not even imagine what people go through in life. For some just a breath is a difficult task. Stop and take a deep breath.... Now imagine not being able to do that. WOW!!! I could go on and on about this. But I won't, I'm sure you can see what I am talking about. I am also very thankful that I am surrounded by amazing people. I have the best job in the world. They treat us like a family and I truly feel like part of the family. As a matter of fact, they had me over for Thanksgiving Dinner...I actually got a little emotional as I held hands with 14 people(all my boss's family and my friend) as Mrs. Bachman said grace and as my friend Dana and I thanked everyone for having us over. Again,  I am so thankful for these wonderful people in my life! Ok... I told you I have so many emotions flowing, I'll try to get back on track.

Weds. the 5th I got to meet the surgeon... I met Dr. Shea Samara.. The son of Dr.Scott Samara..Dr. Shea was very nice. He did mention that I had a very tiny kidney stone in my right kidney(Gabriel) and that they really want to leave the donor with the healthist of the two( they could go in with the scope and retrieve the stone in a tiny basket once removed). So now there was a chance of them taking Gabriel instead of John Matthew  in return could raise the chance of doing a open surgery instead of Laproscopic. I let him know that I was there to donate my kidney and whatever they had to do I was still going to go through with it... Open, Laproscopic, Right, or Left. They were the experts and I fell confident that in their knowledge of what  was the best for me and whatever needed to be done. He let me know they were having a commitee meeting that afternoon and discuss it with them and let me know later. Back to the doctors,they will both be in the operating room with me. From what I understand, I will go into surgery before the recipient. (My family and his family will be in different waiting areas) When they are about to remove my kidney they will get him ready to recieve my kidney. Once they remove John Matthew they will clean him up, give him a nice ice bath(spa treatment) and get him to his new home! I should be in surgery for about 4 1/2 hours from time I get to the OR and into recovery... Then into my room by 2 pm. Susan said that day two will be the toughest for me. I am going to be off work till the 31st. That is just insane... Thats a long time cooped up in my house.... She did say that I can go out to lunch as long as I didn't drive (hint hint, lol) Susan called and let me know they were going to continue with removing John Matthew. :) She let me see the catscan pictures and MAN was that cool... I was able to take pictures of those too... WAY COOL... She gave me my pre-op instructions.... liquid diet Sunday... boo... Those who know me, know I love my food. Of course this is totally worth it, so I will do everything on my pre-admission instruction paperwork with great pleasure! Btw, I think I have passed the kidney stone already:-) and also the recipient and his wife do want to meet me.. Don't know when, but at least I know they do want to:-)


I gave Susan the web address to my blog and prepared her to see a picture of her that I took without her knowing, Oopsy.. She wanted a better picture and of course I had my camera ready to go. What a great lady Susan is..well, I think that about sums up everything to this point. Oh wait!!! My sister Michelle Is in college. She had a speech due. Michelle decided to write this speech about being an organ donor. Using the Information she has learned through me and the Internet she was about to give a excellent speech and had printed off ten forms for people to sign up to be an organ donor...nine were filled out!! Thanks Sis!!!